GLIA-CTN: Sharing a New Approach to Creating Longitudinal Natural History Studies for Rare Diseases

Jun 26, 2024 · 1m 35s
GLIA-CTN: Sharing a New Approach to Creating Longitudinal Natural History Studies for Rare Diseases
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New research from the Global Leukodystrophy Initiative Clinical Trials Network (GLIA-CTN). This summary is based on a paper published in the journal Molecular Genetics and Metabolism on March 18, 2024,...

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New research from the Global Leukodystrophy Initiative Clinical Trials Network (GLIA-CTN). This summary is based on a paper published in the journal Molecular Genetics and Metabolism on March 18, 2024, titled "Longitudinal natural history studies based on real-world data in rare diseases: Opportunity and a novel approach."

Read the paper here: https://www.sciencedirect.com/science/article/abs/pii/S1096719224002683?via%3Dihub

Learn more about GLIA-CTN: https://glia-ctn.rarediseasesnetwork.org
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Author RDCRN
Organization RDCRN
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