PC: Establishing Evidence-based Guidelines for Diagnosis and Management of Liver Disease in Protoporphyrias

Sep 19, 2023 · 1m 53s

Description

New research from the Porphyrias Consortium (PC). This summary is based on a paper published in the journal Hepatology on July 27, 2023, titled "Evidence based consensus guidelines for diagnosis...

New research from the Porphyrias Consortium (PC). This summary is based on a paper published in the journal Hepatology on July 27, 2023, titled "Evidence based consensus guidelines for diagnosis and management of Protoporphyria-Related liver dysfunction in erythropoietic protoporphyria and X-Linked protoporphyria."

Read the paper here: https://journals.lww.com/hep/Citation/9900/Evidence_based_consensus_guidelines_for_diagnosis.518.aspx

Learn more about PC: https://pc.rarediseasesnetwork.org

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