PC: Experts Develop New Guidelines for Diagnosis, Monitoring, and Management of Erythropoietic Protoporphyria and X-linked Protoporphyria
Nov 7, 2022 ·
2m 14s
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Description
New research from the Porphyrias Consortium (PC). This summary is based on a paper published in the Journal of the American Academy of Dermatology on August 27, 2022, titled "Evidence-based...
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New research from the Porphyrias Consortium (PC). This summary is based on a paper published in the Journal of the American Academy of Dermatology on August 27, 2022, titled "Evidence-based consensus guidelines for the diagnosis and management of erythropoietic protoporphyria and X-linked protoporphyria."
Read the paper here: https://www.jaad.org/article/S0190-9622(22)02611-1/pdf
Learn more about PC: https://www1.rarediseasesnetwork.org/cms/porphyrias
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Read the paper here: https://www.jaad.org/article/S0190-9622(22)02611-1/pdf
Learn more about PC: https://www1.rarediseasesnetwork.org/cms/porphyrias
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