Transcribed

Siblings with Childhood Alzheimer's (Roman and Stella)

Oct 24, 2024 · 22m 42s
Siblings with Childhood Alzheimer's (Roman and Stella)
Description

Roman was diagnosed with childhood Alzheimer's (ASMD) a few days after his parents learned they were pregnant with Stella. This diagnosis came with the heavy knowledge that Stella had a...

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Roman was diagnosed with childhood Alzheimer's (ASMD) a few days after his parents learned they were pregnant with Stella. This diagnosis came with the heavy knowledge that Stella had a 25% chance of inheriting the same life-altering condition. Stella was later diagnosed with this fatal disease. As both siblings face a devastating regression, their parents are focused on living in the moment and providing Roman and Stella with joyful memories while they all battle this rare disease together.
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Information
Author Jonathan Clark
Organization Chente Merino
Website -
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