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Find out what you need to know for your personal lung cancer journey through stories and interviews with patients, lung cancer specialists, and key participants in the quest for a...
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Find out what you need to know for your personal lung cancer journey through stories and interviews with patients, lung cancer specialists, and key participants in the quest for a cure.
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MOST DOWNLOADED: From COVID Test to Clementine - Annabelle Gurwitch's Unexpected Lung Cancer Journey
29 OCT 2024 · Most Downloaded Episode: From COVID Test to Lung Cancer Diagnosis Join host Mitch Jelniker as we revisit our most popular Hope With Answers episode featuring Annabelle Gurwitch - actress, author, and unexpected lung cancer advocate. What started as a routine COVID test in 2020 led to a shocking stage IV lung cancer diagnosis for this never-smoker. With her signature wit, Annabelle shares how her tumor ("the size of a Clementine") changed everything. Despite being physically active and healthy except for a slight cough, she joined the growing number of never-smoker women facing lung cancer. Thanks to advances in targeted therapy for her EGFR mutation, Annabelle maintains an active life while advocating for crucial lung cancer research. "I get to have the life I'm having right now because of the drugs that were developed in the last five years," she says, highlighting how research funding directly impacts patient survival and quality of life. Listen as Annabelle brings humor and hope to a serious subject, demonstrating why this episode resonates with so many in the lung cancer community. View https://lcfamerica.org/wp-content/uploads/2023/09/HWA-Ep-21-3-Show-Notes.pdf | https://lcfamerica.org/wp-content/uploads/2023/09/LCFA-Podcast-Ep-21-3-Transcript.docx.pdf
22 AUG 2024 · Delve into the world of adjuvant therapy for lung cancer patients through insightful discussions with Dr. Jonathan Villena-Vargas, an assistant professor of cardiothoracic surgery, and Lisa Goldman, a long-term lung cancer survivor and advocate. Dr. Villena-Vargas provides a comprehensive overview of adjuvant therapy, explaining its role in preventing cancer recurrence after primary treatment. He clarifies the differences between neoadjuvant, adjuvant, and peri-adjuvant therapies, and discusses how treatment decisions are made based on cancer stage and type. The doctor emphasizes the importance of understanding one's specific diagnosis and asking the right questions about biomarkers and treatment options. Lisa Goldman shares her personal journey with stage 4 lung cancer, diagnosed in 2014. Her story highlights the rapid advancements in lung cancer treatment over the past decade, from her initial aggressive chemotherapy to long-term targeted therapy. Lisa's experience underscores the critical role of research in extending and improving the lives of lung cancer patients. This episode offers a balanced mix of expert medical insight and personal experience, making complex medical concepts accessible to a general audience. It serves as an invaluable resource for those navigating the challenges of lung cancer diagnosis and treatment, highlighting the significant progress made in recent years and the reasons for hope in the fight against this disease. Guests https://lcfamerica.org/researcher/jonathan-villena-vargas-md/ Dr. Villena-Vargas is a https://weillcornell.org/jonathan-villena-vargas-md, with particular expertise in the surgical management of lung cancer. He has written numerous clinical publications about screening, staging, and the https://www.youtube.com/watch?v=lHQqie-VNqQ. https://lcfamerica.org/speaker-profile/lisa-goldman/ Diagnosed in 2014 with https://lcfamerica.org/story/persistent-cough-and-lung-cancer/, Lisa received immediate chemotherapy. She later co-founded https://www.theros1ders.org/, a Facebook advocacy group for lung cancer patients. https://lcfamerica.org/wp-content/uploads/2024/08/Ep-24-7-Show-Notes-Adjuvant-Therapy-Lung-Cancer.pdf | https://lcfamerica.org/wp-content/uploads/2024/08/24-7-Adjuvant-Therapy-for-Lung-Cancer-Transcript.pdf | https://youtu.be/iSsb25mG6Eg?si=6WIQEukSeDYmsQBu
20 JUN 2024 · Explore the remarkable small cell lung cancer treatment advancements that offer renewed hope to patients and their loved ones. Dr. Jacob Sands, a leading oncologist from the Dana-Farber Cancer Institute, and Maida Mangiameli, a small cell lung cancer survivor, share their expertise and experiences, providing a unique perspective on the latest breakthroughs in small cell lung cancer treatment. Dr. Sands explains the differences between small cell and non-small cell lung cancer, emphasizing the aggressive nature of small cell lung cancer and the importance of early detection through lung screening. He highlights the significant progress made in lung cancer treatments, particularly the introduction of immunotherapy drugs as a standard of care in the first-line setting, leading to long-term disease control and potential cures for some patients. The conversation shifts to the promising T-cell engager therapy, a novel approach that harnesses the immune system to target and destroy cancer cells. Dr. Sands uses a baseball analogy to illustrate the effectiveness of different treatments, suggesting that T-cell engagers may be hitting home runs more frequently, offering hope for longer-lasting responses with fewer side effects. Maida Mangiameli shares her personal journey with small cell lung cancer, emphasizing the importance of a supportive oncology team and not blaming oneself for the disease. She addresses the stigma associated with lung cancer and the need for increased awareness and empathy. Both Dr. Sands and Maida stress the significance of clinical trials in advancing small cell lung cancer treatment and encourage patients to discuss trial options with their doctors. They also touch on the importance of lung cancer screening for early detection, with Maida offering practical advice for newly diagnosed patients. The small cell lung cancer treatment advancements, particularly the emergence of T-cell engager therapy, provide tangible reasons for patients and their loved ones to remain hopeful, offering the promise of longer, healthier lives for those affected by this challenging disease. https://lcfamerica.org/wp-content/uploads/2024/06/Ep-24-6-SCLC-Advancements-Show-Notes.pdf | https://lcfamerica.org/wp-content/uploads/2024/06/EP-24-6-SCLC-Treatment-Advancements-Transcript.pdf | https://youtu.be/0BEGQPw4m5U
23 MAY 2024 · Palliative care is an approach that improves the quality of life of patients and their families facing life-threatening illness. A team of doctors, nurses, social workers, and other specialists work with a patient’s existing physicians to provide an extra layer of support and specialized care. Palliative care aims to alleviate suffering, nurture comfort, and promote understanding for people living with lung cancer. It is a holistic and compassionate care designed to relieve symptoms, pain, and stress. Guests Sherri Cervantez, MD, Director of Palliative Oncology, UT Health San Antonio MD Anderson Cancer Center Sally Cain was diagnosed with Stage 4 lung cancer in May 2022 after experiencing a nagging pain in her right side. Sally has experienced great support from her Palliative Care team in Texas. Her husband died a year before, and regrettably, he did not have a palliative care team. https://lcfamerica.org/wp-content/uploads/2024/05/Show-Notes-24-5-Palliative-Care.pdf | https://lcfamerica.org/wp-content/uploads/2024/05/EP-24-5-Palliative-Care-Transcript.pdf | https://youtu.be/1QGzASH_MaE?si=_aXv8ukvUhZPLBpV Resources https://lcfamerica.org/living-with-lung-cancer/palliative-care/https://www.keiro.org/fact-sheet/palliative-care?gad_source=1&gclid=CjwKCAjwkuqvBhAQEiwA65XxQLE6L6HMpvfDpsfAFzQD9m2g3R-Kti8HKMDsD_J_2FK_nSL8_u9UWBoCuAAQAvD_BwEhttps://getpalliativecare.org/whatis/disease-types/lung-cancer-palliative-care/
18 APR 2024 · Cada año, alrededor de 6.000 hombres hispanos y 5.800 mujeres hispanas serán https://lcfamerica-org.translate.goog/about-lung-cancer/diagnosis/?_x_tr_sl=en&_x_tr_tl=es&_x_tr_hl=en&_x_tr_pto=wapp. El cáncer de pulmón es la principal causa de muerte por cáncer entre los hombres hispanos y la segunda causa entre las mujeres hispanas. Por eso la detección temprana es fundamental. El Dr. Jonathan Villena-Vargas, un reconocido experto en cáncer de pulmón, y Yovana María Portillo, una https://lcfamerica-org.translate.goog/living-with-lung-cancer/?_x_tr_sl=en&_x_tr_tl=es&_x_tr_hl=en&_x_tr_pto=wapp, se reúnen en este podcast informativo para compartir sus ideas y experiencias, ofreciendo esperanza y orientación a los pacientes y sus familias, en particular a aquellos en el Comunidad hispana. Discuten la definición y los tipos de cáncer de pulmón, enfatizando que cualquier persona con pulmones puede desarrollar la enfermedad, no solo los fumadores. La historia personal de Yovana como nunca fumadora diagnosticada a los 35 años resalta la importancia de la detección temprana y una mayor conciencia de los factores de riesgo más allá del tabaquismo. El podcast explora los últimos avances en opciones de tratamiento, incluida la cirugía, la quimioterapia, la radiación, las terapias dirigidas, la inmunoterapia y la terapia combinada, que se adaptan al tipo y estadio específico del cáncer de pulmón de cada paciente. Yovana comparte su viaje a través de la abrumadora experiencia de un diagnóstico de cáncer de pulmón, aprendiendo nueva terminología médica y tomando decisiones de tratamiento con su equipo médico, al mismo tiempo que arroja luz sobre los factores culturales que impactan la experiencia del cáncer de pulmón en las comunidades hispanas. Tanto la Dra. Villena-Vargas como Yovana enfatizan la importancia de desestigmatizar el cáncer de pulmón, promover la detección temprana mediante pruebas de detección y fomentar la comunicación abierta con los proveedores de atención médica. A lo largo del podcast, ofrecen una poderosa combinación de conocimientos médicos y experiencia personal, brindando a los pacientes conocimiento y esperanza, y trabajando incansablemente para mejorar los resultados y la calidad de vida de los afectados por el cáncer de pulmón. Invitados Jonathan Villena-Vargas, MD; Profesor asistente de cirugía cardiotorácica en el Hospital Presbiteriano de Nueva York, Weill Cornell Medicine Yovana María Portillo, defensora del paciente y Voz de la Esperanza: miembro de la Oficina de Oradores de la LCFA https://lcfamerica.org/wp-content/uploads/2024/04/EP-24-2-Mostrar-Notas.pdf | https://lcfamerica.org/wp-content/uploads/2024/04/Transcripcion_-Superar-el-cancer-de-pulmon.docx.pdf | Ver video Recursos adicionales
- https://www.cinj.org/impact-lung-cancer-hispanic-community#:~:text=According%20to%20the%202021-2023,from%20the%20disease%20this%20year
- https://salud-america.org/how-does-lung-cancer-impact-latinos
- https://lcfamerica.org/lung-cancer-info/detection
- https://minorityhealth.hhs.gov/cancer-and-hispanic-americans
- https://cdmrp.health.mil/cwg/stories/2023/Yovana_Portillo_profile
21 MAR 2024 · Discover empowering strategies for lung cancer caregiving in the Hope with Answers podcast. Gain insights from experts and a survivor's story on balancing care with self-care. This episode is a must-watch for any caregiver seeking guidance, support, and the strength to navigate their vital role with grace and resilience. Guests: Jenni Daniel, BSN, RN - Life Coach for lung cancer survivors and their partners, helping them to navigate their cancer journey. Jenni owns and operates the MyNurse At Home, a cancer and life coach center. Frank and Debbie McKenna, Lung Cancer survivor joined by his wife/caregiver. https://lcfamerica.org/wp-content/uploads/2024/03/EP-24-4-Caregiver-Show-Notes-.pdf | https://lcfamerica.org/wp-content/uploads/2024/03/EP-24-4-Caregivers-Transcript.docx.pdf | https://youtu.be/PtsQdoatmEc?si=xL-h0CANpbpfXoeq Numerous resources are available to assist both lung cancer patients and their caregivers in this journey. https://www.mynurseathome.com https://www.lungcancercenter.com/news/resources/caregivershttps://www.healthline.com/health/lung-cancer/caring-for-someone-with-lung-cancer-what-to-knowhttps://www.cancer.org/cancer/caregivers/what-a-caregiver-does/taking-care-of-yourself.htmlhttps://www.healthwellfoundation.org/realworldhealthcare/lung-cancer-being-a-better-caregiver LCFA’s mission is the improvement in survivorship of lung cancer patients through the funding of transformative science. While raising funds to support lung cancer research, LCFA will raise the public’s awareness and serve as a resource for patients or anyone seeking answers, hope, and access to updated treatment information, scientific investigation, and clinical trials. You can also join the conversation with LCFA on https://www.facebook.com/lungcancerfoundation/, https://twitter.com/lcfamerica, and https://www.instagram.com/lcfamerica/.
22 FEB 2024 · Explore the critical role of https://lcfamerica.org/about-lung-cancer/diagnosis/biomarkers/ in lung cancer treatment with Dr. Salman Punekar, Medical Oncologist at NYU Langone Health. Specializing in early-phase clinical development, Dr. Punekar explains the function of the biomarker STK11, a newer discovery shaping approaches to non-small cell lung cancer therapies. Guests https://www.linkedin.com/in/salmanpunekar/, Assistant Professor of Medicine of Medical Oncology at NYU Langone Health. Specialization in early-phase clinical development and translational research. https://lcfamerica.org/speaker-profile/stephanie-williams, Lung Cancer survivor and clinical trial participant https://lcfamerica.org/wp-content/uploads/2024/02/EP-24-3-Decoding-STK11-in-Lung-Cancer-Therapy-Show-Notes.pdf | https://lcfamerica.org/wp-content/uploads/2024/02/EP-24-3-Decoding-STK11-in-Lung-Cancer-Therapy-Transcript.pdf | https://youtu.be/X1pQf0QoHBM Unlocking Treatment Pathways for Lung Cancer Highlighting the crucial role of biomarker testing in lung cancer, take an in-depth look at the function of STK11 as a tumor suppressor gene and its impact when mutated. Learn more about the latest research on the STK11 biomarker's influence on treatment strategies for non-small cell lung cancer from Dr. Salman Punekar. Dr. Punekar explains the function of STK11 as a tumor suppressor gene and its implications when mutated, affecting the efficacy of therapies like immunotherapy. STK11 is believed to negatively influence response to immune checkpoint inhibitors (ICIs) in https://lcfamerica.org/about-lung-cancer/diagnosis/biomarkers/ (NSCLC). Then hear from Stephanie Williams, a lung cancer patient who underscores the life-changing impact of clinical trials, which informed her treatment and emphasized the importance of biomarker discovery. She shares why she advocates for patient education, the pursuit of clinical trials, and the need for ongoing research to improve lung cancer care.
21 JAN 2024 · In this Hope With Answers episode, host Diane Mulligan interviews Dr. Tejas Patil, an oncologist specializing in lung cancer, about https://lcfamerica.org/about-lung-cancer/diagnosis/biomarkers/ros1/. As Dr. Patil explains, "ROS1 is a type of mutation that we see in patients who have lung cancer. It's one of many but it's an important one because there is targeted treatments available to these patients that really are not like chemotherapy." A ROS1-positive lung cancer, also known as a ROS1 rearrangement in lung cancer, refers to any lung cancer that tests positive for a fusion in the ROS1 gene. ROS1 rearrangements occur in approximately 1-2% of non-small cell lung cancer (NSCLC) patients. ROS1-positive lung cancer tends to be aggressive and can spread to the brain and the bones. The hosts also speak with Lysa Buonanno, a 12-year lung cancer survivor and patient advocate living with ROS1-positive lung cancer. Lysa stresses the importance of self-advocacy. "You have to keep advocating for yourself. Throughout this entire process I think that is so critically important." She describes her excitement at being able to join a https://lcfamerica.org/about-lung-cancer/clinical-trials/ for a new https://lcfamerica.org/treatment/targeted-therapies/ when her cancer progressed. Overall, the episode provides critical information about this rare form of lung cancer, highlights new research and treatments, and offers inspiration through Lysa's story. As Diane says, not only do Dr. Patil and Lysa help us understand ROS1 lung cancer, but they also give hope to anyone living with lung cancer. Guests Tejas Patil, MD, https://som.cuanschutz.edu/Profiles/Faculty/Profile/24489 Lysa Buonanno, https://lcfamerica.org/speaker-profile/lysa-buonanno/, a mother of two, who has ROS1 mutation and is being treated with the targeted therapy. https://lcfamerica.org/wp-content/uploads/2024/01/EP-24-1-ROS1-Positive-Lung-Cancer-Show-Notes.pdf | https://lcfamerica.org/wp-content/uploads/2024/01/EP-24-1-ROS1-Positive-Lung-Cancer-Transcript.pdf | https://youtu.be/ZNjSA7kmNJ8
28 DEC 2023 · Sexual side effects of a lung cancer diagnosis can be physical, mental, and emotional. Sexuality is about emotional connection and the expression of intimacy. However, a lung cancer diagnosis can change the emotional needs of each partner. Further impacting the situation, sexual problems are not often discussed during oncology visits. And having a sex talk with your doctor may be intimidating. In this podcast, we undercover what lung cancer patients and their partners can expect and how to best discuss these issues with their health care professionals. Questions like:
- How does a lung cancer diagnosis impact intimacy in relationships?
- What are some of the physical side effects of lung cancer treatment that can affect intimacy?
- How does the emotional burden of a cancer diagnosis affect sexual desire and communication in relationships?
Guests: Jenni Daniel, BSN, RN, Life Coach for lung cancer survivors and their partners, helping them to navigate their cancer journey. Jenni owns and operates the MyNurse At Home, a cancer and life coach center. Annabelle Gurwitch, Lung Cancer survivor, actress, activist, and best-selling author went for a Covid test and left with a stage 4 lung cancer diagnosis. Annabelle’s story of an accidental lung cancer diagnosis is a very common story among lung cancer patients. In Annabelle’s case, getting an accurate diagnosis indicates her biomarker, EGFR Exon21. https://lcfamerica.org/wp-content/uploads/2023/12/HWA-Navigating-Intimacy-Challenges-in-Lung-Cancer-Show-Notes.pdf | https://lcfamerica.org/wp-content/uploads/2023/12/EP-23-6-TRANSCRIPT-Navigating-Intimacy-Challenges-in-Lung-Cancer-Transcript.pdf | https://youtu.be/ebgXo4tfuQk?si=oETnTxOTsACR8P1b
30 NOV 2023 · This episode of Hope With Answers: Living with Lung Cancer Podcast tackles the common misperception that all cancer patients fit the stereotype of being older, frail, chain-smokers. 60% of people living with lung cancer are never-smokers – who work hard to convince others, including their primary care physician, that despite their rather “normal”, vibrant appearance, they face a devastating disease. Host Diane Mulligan opens the episode by asking “What does someone living with lung cancer look like?” She and co-host Jordan Sherman go on to make the point that in reality, anyone with lungs can develop lung cancer, including young people and never-smokers. Guests https://lcfamerica.org/about/advisory/board/dr-david-carbone-m-d-ph-d/ Aurora Lucas, https://www.instagram.com/auroralucas, was diagnosed with Stage 2A Lung Cancer at age 28. https://lcfamerica.org/wp-content/uploads/2023/11/FINAL-LCFA-EP-23-5-Transcript.pdf | https://lcfamerica.org/wp-content/uploads/2023/11/You-Dont-Look-Like-You-Have-Lung-Cancer-Show-Notes.pdf | https://youtu.be/a9AqEcMCZzQ Doctors Need to Consider Lung Cancer Despite Patient's Age They first interview Dr. David Carbone, an oncologist at The Ohio State University, about the stigma around what a typical lung cancer patient looks like. Dr. Carbone stresses that “if you have lungs, you can get lung cancer” and that doctors need to consider lung cancer as a potential diagnosis even in young, healthy never-smokers who present with respiratory symptoms. Later in the episode, LCFA Speakers Bureau member Aurora Lucas shares her story of being diagnosed with lung cancer in her late twenties. She talks about the difficulty she initially had getting doctors to take her respiratory symptoms seriously: “The first thing after I told the doctor my concerns about coughing, he said, ‘Everything is okay. Go boil some water and add some honey to it.” And I think I left that office like, what? I just didn’t feel heard.” Fighting An Outdated Lung Cancer Stereotype After months of delays, Lucas was finally diagnosed with lung cancer. She now works to educate people that her experience is what lung cancer can look like today - not just the outdated stereotype. As Mulligan summarizes, appearance can be misleading when it comes to lung cancer. Modern targeted therapies allow many patients to live active lives and maintain normal appearances while battling the disease. But that doesn’t mean they aren’t facing challenges like side effects, scan anxiety, and other struggles behind the scenes. The takeaway is that anyone with lungs is at risk for lung cancer, regardless of age or smoking status. And just because patients may look well on the outside, doesn’t mean they aren’t fighting a serious diagnosis. LCFA aims to break down misperceptions around what having lung cancer means today.
Find out what you need to know for your personal lung cancer journey through stories and interviews with patients, lung cancer specialists, and key participants in the quest for a...
show more
Find out what you need to know for your personal lung cancer journey through stories and interviews with patients, lung cancer specialists, and key participants in the quest for a cure.
show less
Information
| Author | LCFA |
| Organization | LCFA |
| Categories | Science |
| Website | lcfamerica.org |
| lcfa@lcfamerica.org |
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