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StoryCorps - Hemophilia

  • Hemophilia: Jeanette, Brian and Jeremiah’s story

    4 JUN 2021 · Mother, father and son discuss their individual and collaborative experiences in living with mild hemophilia. Support from Children’s Minnesota and their community has helped them the most. Faith has played a central role throughout the diagnosis process.
    Played 6m 49s
  • Hemophilia: Tanner and Jason’s story

    4 JUN 2021 · Jason is the primary caregiver of his teenage son, Tanner. Jason discusses his experience in raising a son with hemophilia – specifically his journey of having a port, and the support he has received from Children’s Minnesota. Tanner discusses that, sometimes, hemophilia is challenging because it limits the activities he can do with his friends. However, he loves going to camp, and still lives life to the fullest.
    Played 6m 32s
  • Hemophilia: Robyn, Xavier and Dominic’s story

    4 JUN 2021 · Mother reflects on her son’s difficult birth and diagnosis. Father shares his dreams for his son. Both parents share support for one another as they embark on this journey.
    Played 6m 41s
  • Hemophilia: Stephanie, Jim and Nate’s story

    4 JUN 2021 · Stephanie, Jim and Nate discuss their journey in Nate’s hemophilia diagnosis at birth. There was no history of hemophilia in their family. Not only have they embraced his diagnosis, but see it as integral to their family. The Millers celebrate the resiliency that often comes with a lifelong, chronic diagnosis. Stephanie highlights the importance of the bond between siblings.
    Played 7m 10s
  • Hemophilia: Katie, Kristie and John’s story

    4 JUN 2021 · Twins Katie and Kristie discuss their family history of Von Willebrand’s Disease with their father, John. Katie and Kristie were diagnosed later in life, allowing for their complex family history to be explained. This diagnosis has both strengthened their family bond, and also provided a lesson in advocacy for each family member.
    Played 8m 15s
  • Hemophilia: Emily’s story

    4 JUN 2021 · Emily discusses son Logan being diagnosed without a family history, due to circumcision bleeding. Emily discusses the support she and her husband have for one another.
    Played 5m 26s
  • Hemophilia: Christina and TaQuilla’s story

    4 JUN 2021 · Young mother, Christina, discusses her experience in raising her son who is diagnosed with hemophilia. She relies greatly on her cousin, TaQuilla, her mother, and Children’s Minnesota. She feels as though her son’s life is not limited by hemophilia, but rather enriched by it.
    Played 7m 5s
  • Hemophilia: Kari and Andreas’s story

    4 JUN 2021 · Kari and son, Andreas, discuss what it is like to receive prophy infusions. Kari discusses her journey to parenthood while being a carrier of an unknown, rare, hemophilia mutation. The importance of both community and marital support is valued by Kari.
    Played 6m 36s
  • Hemophilia: Amy and Johnathan’s story

    4 JUN 2021 · Amy and Johnathan discuss the similarities and differences in raising their two sons - one with a hemophilia diagnosis and one without.
    Played 8m 7s
  • Hemophilia: Abby and Dylan’s story

    4 JUN 2021 · Parents Abby and Dylan discuss their experience with their son, Evan, and his diagnosis of Hemophilia A. As a couple, they have supported each other through the journey and have been empowered through the ability to do self infusions with Evan at home.
    Played 7m 3s
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Author Children's Minnesota
Categories Health & Fitness
Website -
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