StoryCorps - Sickle Cell Disease

StoryCorps - Sickle Cell Disease

Sickle cell disease: Romel and Nicole’s story

7 JUN 2021 · Romel and Nicole discuss their experience with the Caribbean medical care system compared to the United States. They agree that the team at Children’s Minnesota has delivered outstanding care for their daughter, Daniella.

Played 6m 44s
Sickle cell disease: Trevon and Rae’s story

7 JUN 2021 · Rae recounts her experiences in caring for her son with sickle cell. In the beginning, she remembers not knowing what questions to ask. Trevon sees himself as an advocate for those who do not have a voice in the sickle cell community.

Played 4m 33s
Sickle cell disease: Precious and Joanna’s story

7 JUN 2021 · Mother and daughter highlight the normalcy of childhood despite a sickle cell diagnosis. Both mother and daughter receive support from family members.

Played 3m 54s
Sickle cell disease: Oliver and Charlie’s story

7 JUN 2021 · Oliver discusses his experience with sickle cell, including triumphs and challenges. His mother, Charlie, discusses the support she has received through her family and Children’s Minnesota.

Played 5m 35s
Sickle cell disease: Mary and Okuny’s story

7 JUN 2021 · Patients Mary and Okuny discuss their individual experiences with sickle cell and how it has impacted their outlook on life. They both believe that sickle cell can not be used as an excuse, but rather, a source of resilience.

Played 4m 39s
Sickle cell disease: Ed Jenkins III and Ed Jenkins, Jr.’s story

7 JUN 2021 · Father and son discuss how sickle cell has impacted understanding of their family and childhood experience.

Played 6m 6s
Sickle cell disease: Tamara and Candice’s story

7 JUN 2021 · Candice and her daughter, Tamara, discuss the challenges sickle cell disease has presented, however they both stay rooted in their faith and also in their personal resilience values.

Played 6m 7s
Sickle cell disease: Jalen, Anthony and Lenora’s story

4 JUN 2021 · Lenora interviews her sons Jalen and Anthony (TJ). Both are diagnosed with sickle cell. Although the brothers share a diagnosis, their experiences differ broadly.

Played 4m 20s
Sickle cell disease: Patricia and Bjork’s story

4 JUN 2021 · Mother, Patricia, and daughter, Bjork, discuss the resilience rooted in sickle cell disease. Although sickle cell pain crises can be challenging, support from Children’s Minnesota has allowed for a strong bond to form between mother and daughter.

Played 4m 12s
Sickle cell disease: Blandine and Jalen’s stories

4 JUN 2021 · Teenage friends Blandine and Jalen discuss their individual and shared experiences with sickle cell. The two friends met at Children’s Minnesota and have shared a unique bond ever since.

Played 6m 11s